Rare Revolution Magazine ·
"A story rooted in the rare disease world can resonate beyond it"
Maria Garrido Gutiérrez, NPC Advocate and INPDA Communications Consultant, on being brought into the development of Hadid and I.
"...from early on, John involved me in the development process. He asked for my input to ensure the depiction of patient experience was authentic and respectful, and he also invited me to join the production team as an assistant - alongside other members of the rare disease community.
The aim was ambitious: to break out of our usual advocacy channels and reach a broader audience, using a blend of comedy and drama to foster empathy, connection, and awareness. The result was incredibly rewarding. Hadid and I premiered at the Sunderland Shorts Film Festival - a BIFA-qualifying event - where it received strong coverage, including a feature on BBC News.
Even more exciting was the Audience Choice Award it won at the festival. This recognition means so much because it confirms that a story rooted in the rare disease world can resonate beyond it - and even compete among mainstream productions..."
Maria Garrido Gutiérrez, NPC Advocate & INPDA Communications Consultant, quoted in Rare Revolution Magazine.